Duchenne's muscular dystrophy
The Cooperative International Neuromuscular Research Group
CINRG was formed in 1999 as the clinical research arm of the Duchenne Muscular Dystrophy (DMD) Research Center (DMDRC) and the Research Center for Genetic Medicine at the Children�s National Medical Center (CNMC). The CINRG Coordinating Center is located in the Children�s Research Institute on the 5th floor of CNMC in Washington, DC and conducts research in Duchenne Muscular Dystrophy, Duchenne Muscular Dystrophy Research, Musculary Dystrophy research, and Duchenne Muscular Dystrophy DMD research.
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Foundation to Eradicate Duchenne, Inc.
Foundation to Eradicate Duchenne is a non-profit organization established to find a cure for Duchenne Muscular Dystrophy, the leading lethal childhood genetic disease.
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DMD Registry
The DMD Registry is an international database for health professionals and researchers to help accelerate the development and delivery of new treatments for Duchenne and Becker Muscular Dystrophy. The DMD Registry is a secure, legally protected and has been endorsed by senior clinicians, health professionals and researchers.
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Cure Duchenne
CureDuchenne brings a different perspective to DMD research. Many research projects are now seeing success in lab animal models. As our expertise has been in business, our goal is to identify research that has the most likelihood of making it to clinical trials and then provide the financial bridge that will take it from the lab and into human trials. We are thrilled that private industry has taken an interest in Duchenne, as they have the model and resources to bring it to market.
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Duchenne Muscular Dystrophy Research Fund
DMDfund is a non-profit 501 (c)(3) organization founded by parents, relatives and friends of kids who have DMD. DMDfund is dedicated to finding a cure for DMD by funding research, so that millions of kids worldwide can live.
The DMDfund is a distinct and independent organization, and is not
affiliated with, nor receives any funding from, any other organization.
Goal: $30 Million Dollars. Partial List of Immediate Needs
• $1.5 million for a pilot project for research on treatment of DMD by implanting mesenchymal stem cells, to be performed at Children’s Hospital in Los Angeles.
• $4 million to fund 40 new PhD research associates for 2 years. These researchers are desperately needed to continue the fight to find a cure for DMD.
• $5 million to establish DMD clinical fellowships at local medical schools, as currently, there are no DMD specialists in the medical community.
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Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy.
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The Jett Foundation
The Jett Foundation is a tax exempt, 501(c)3 nonprofit organization and all donations are tax deductible.
The Jett Foundation was founded by Stephen and Christine McSherry, a local Pembroke family whose seven-year-old son Jett was diagnosed with Duchenne Muscular Dystrophy (DMD) two years ago. This family is 100% dedicated to funding research and education specifically focused on Duchenne. We provide events that bring people together for a great time as well as giving them the chance to make a difference in the lives of children who are suffering with DMD.
Monies are given directly to researchers with no third party involvement. Administration costs kept to the bare minimum due to the large number of volunteers involved in the organization. All legal fees, accounting fees, printing and writing are donated by local professionals trying to help.
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Action Duchenne
Action Duchenne (Formerly PPUK) exclusively funds research for a cure and promotes campaigns for better medical care for Duchenne and Becker Muscular Dystrophy. Duchenne is so severe that young men are totally paralysed by late teens and die young from respiratory or heart failure. Your donations and support will help us end this tragic waste of young lives.
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Last listing added: 02/20/08
Blogs by People with Duchenne's (15)
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