Blogs by People with Duchenne's
Winheld's World
(1 vote)
Diagnosed with Duchenne muscular dystrophy when I was 4 1/2 years old, I have been in a motorized wheelchair since age 10. Now 29, I have been ventilator-dependent for five years. Despite my disease, I have strived to live as normally as possible. I was mainstreamed in public schools, graduated college, and currently work for an accessible IT consulting firm.
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Nodakwheeler's Disability Blog
I am 29 years old and use a ventilator 24/7 because I have Duchenne Muscular Dystrophy.
My blog discusses my life experience with a trach and vent. I also will write about other things happening to me and the world around me.
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Tyler Ride
The Tyler Ride is a motorcycle poker run that helps raise money for the Tyler Fund. The Tyler Fund is a set up fund for me Tyler. The Tyler Fund was set up to help with the purchases of specialized equipment that I am going to need in the very near future.
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Diving a Dream
The Dream...
Matt Johnston is a 28 year old from Minnesota that has been diligently pursuing his dream of one day going SCUBA diving. Daily, he defies the odds with a will to battle muscular dystrophy just to survive, hoping one day to experience a world that many take for granted.
As it happens, through persistence, his dream is becoming a reality. Matt has earned the attention of several respected individuals in the fields of diving technology, medicine, and ocean engineering, and is building a network of support and a team to facilitate the project. Just one of the complications to be addressed is that Matt needs a ventilator to breath. Therefore, the project will require the development or modification of a custom underwater life support system. There are several phases of this project, and the success of each relies largely on the ability of numerous resources to be pulled together.
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Scuba Diving Dream
(1 vote)
I started this web page with the hopes of sharing my dream with the world. I am looking for any kind of help a person can offer. I am really close to making my dream come true along with the medical persons and scuba divers that are helping me. I sent my information out to local and national media sources to see if anyone was interested. An article written by Susan Long was published in Dive Chronicles about my dream. Scuba News published an article, along with Diver magazine UK. Quest magazine through the MDA did a small piece also. A couple local newspapers have done stories also. Navy SEALS web site published one too! I have also contacted quite a few colleges to see if their engineering departments would be willing to use my dream as a project. If I get enough funds, a couple colleges may help out. I've also received packages from some elementary schools from around the country where young students have been sending me hand drawn pictures and...
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Last listing added: 02/20/08
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