Friedreich's Ataxia
Friedreich's Ataxia Research Alliance
The Friedreich's Ataxia Research Alliance is a national, public, 501(c)(3), non profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich's ataxia. FARA's mission is to slow, stop, and reverse the damage caused by this disorder.
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National Ataxia Foundation
The National Ataxia Foundation is a nonprofit, membership-supported organization established in 1957 to help ataxia families. The Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research. The Foundation supports research in dominant ataxia (including SCA’s), recessive ataxia (including Friedreich’s), and sporadic ataxia. In addition, the Foundation has developed an extensive library of NAF brochures, fact sheets, books, and other educational material relating to ataxia. Also available to its members is a quarterly news publication called “Generations”. This 48-page magazine provides the latest information on ataxia research, articles on living with ataxia, and personal accounts of ataxia families throughout the United States. The Foundation also provides informational referrals on neurologist in your area.
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Category Stats
Subcategories: 2
Listings: 2
(6 counting subcategories)
Regular: 2
Last listing added: 09/01/08