Avocado Press
(0/5 based on 0 votes)
Publishing books and periodicals on disability rights and the disability experience since 1981.
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Submitted 08/24/05
Neuromuscular Diseases LinksGeneral
General
General subcategories:
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Submitted 08/24/05
Make-A-Wish Foundation
(0/5 based on 0 votes)
The premier wish-granting organization for children, including Make-A-Wish Foundation of America, Make-A-Wish Foundation International and Make-A-Wish Foundation local chapters. Please visit our site for children's wish granting information and links to all Make-A-Wish Foundation chapter sites.
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Submitted 08/03/05, edited 08/03/05
My Breath My Music
(5/5 based on 1 vote)
A demonstration of what can be accomplished with breath therapy.
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Submitted 07/14/05
Dr. Bach
(0/5 based on 0 votes)
"John R. Bach, M.D., is another must-read author in the NMD community. His book, Guide to the Evaluation and Management of Neuromuscular Disease (Hanley & Belfus, Inc., 1999), presents in plain language an excellent overview of the stages of neuromuscular disease and the medical complications that may arise in each stage. One of the refreshing differences between this book and others on the subject is Dr. Bach’s “good news,” forged in experience rather than statistics, of the treatment options that help children and adults with NMD live longer and avoid invasive medical procedures." RehabInfo Network for Neuromuscular Diseases
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Submitted 06/07/05
Angels for Hope
(0/5 based on 0 votes)
Angels for Hope is an organization that offers free crocheted angels, butterflies or smiley faces for anyone in need of hope.
We attach a small card with the angel to say to an injured or ill person, you are not alone, others do care, and you are in our thoughts and prayers.
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Submitted 06/07/05
Hugs And Hope
(0/5 based on 0 votes)
Children fighting for their lives have very little to smile about. You can change that by sending them some "Happy Mail." Cheery cards give these kids a few more smiles, a little more hope, and a reason to get out of bed each day.
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Submitted 06/07/05
Make A Child Smile Organization
(0/5 based on 0 votes)
Send a card and/or a gift to sick children and bring a smile to their face! The Make A Child Smile Organization features
different kids each month who are facing a chronic or life-threatening illness and asks web visitors to send them a card to brighten their day.
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Submitted 06/07/05
Andrew's Toybox
(0/5 based on 0 votes)
Andrew's Toybox is a non-profit, tax-exempt organization dedicated to providing special care packages filled with toys, crafts & books to children with life-threatening or chronic illness. Our mission is simply to provide smiles to the faces of sick children! We feel these children deserve all of the special treatment they can get!
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Submitted 06/07/05
Muscular Dystrophy Association
(0/5 based on 0 votes)
The Muscular Dystrophy Association is a voluntary health agency — a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.
MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education.
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Submitted 06/07/05
Madison's Foundation
(0/5 based on 0 votes)
Madisons Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication amongst parents, physicians and medical experts. Our core value is that information is support. We believe helping parents make informed decisions can alleviate some of the frustration they inevitably experience when fighting for their children's lives.
The Madisons Foundation Rare Disease Research Project enlists UCLA medical students to work with afflicted children, their parents and attending physician specialists to generate accurate – and parent-friendly – data about diseases and available treatments. Developed in conjunction with the David Geffen School of Medicine at UCLA, we believe these students are the vanguard of a new generation of physicians who embrace the special challenge of communicating effectively with parents and children.
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Submitted 06/07/05