http://www.neuromuscular-diseases.com en-us Parenting, life, love, religion and a very silly-sounding disease. http://contemporarymomoftwo.blogspot.com/ Mon, 18 Apr 2011 15:39:01 GMT http://www.neuromuscular-diseases.com/contemporary_mom_of__and_wife_of_-102.html The Georgia Allen Fund is a UK based charity raising funds to support Georgia's treatment and equipment not covered by the NHS. http://www.thegeorgiaallenfund.com/ Sun, 17 Apr 2011 14:52:25 GMT http://www.neuromuscular-diseases.com/the_georgia_allen_fund_for_charcot_marie_tooth-101.html Michael Phillips is a writer from Tampa, FL. The written word, to him, is like fine art, like liquor, beautiful and intoxicating. He’ll tell you writing’s possibly the only thing he does well, which is probably true. Due to the magic of bad genetics he doesn’t walk, nor does he breathe without the assistance of machines. One could also argue that he’s simply astonishingly lazy. Michael also doesn’t speak due to a little breathing tube in his throat, thus Johnny Depp once played his voice on an Emmy award winning episode of Showtime’s This American Life. Michael writes something akin to a live memoir at lithiumcreations.com, as well as short fiction. At night, he’s a disco goddess. http://www.lithiumcreations.com/ Fri, 30 Jul 2010 21:30:09 GMT http://www.neuromuscular-diseases.com/my_whole_expanse_i_cannot_see-100.html The Gwendolyn Strong Foundation (GSF) seeks to raise awareness about and fund research for Spinal Muscular Atrophy (SMA), the leading genetic killer of young children, and support those impacted by SMA and other life-altering diseases. http://gwendolynstrongfoundation.org/ Thu, 17 Jun 2010 04:12:05 GMT http://www.neuromuscular-diseases.com/the_gwendolyn_strong_foundation-99.html A blog about my living with Charcot Marie Tooth Disease. More actually, the life of a person with CMT. http://livingwithcharcotmarietooth.blogspot.com/ Wed, 21 Apr 2010 14:39:49 GMT http://www.neuromuscular-diseases.com/living_with_charcot_marie_tooth-98.html