Spinal Muscular Atrophy subcategories:
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Project Cure SMA is a collaborative initiative between Families of SMA and clinical investigators designed to help facilitate the rapid translation of promising new therapies to individuals with SMA. The primary goal of Project Cure SMA is to develop safe and well-tolerated clinical protocols to help identify effective therapies for SMA.
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On Yer Bikes is a site dedicated to fundraising for the Jennifer Trust for Spinal Muscular Atrophy. It is run by the family of Alisha May Tansey. Alisha sadly passed away aged 6 months and 22 days, on the 1st October 2001 and is missed by everyone who knew her. Please help us raise as much money as possible!
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The Wyatt Kyle Sutker Foundation, Ltd has been established in honor of our infant son Wyatt, to directly help families deal with the uncertainty, pain, and agony of having a newborn or infant stricken by Spinal Muscular Atrophy Type I. The foundation will help parents deal with the shock of bringing home a seemingly healthy newborn, only to learn that the child's life will be measured in weeks, not years, and assist in gathering funds for research specifically dedicated to the nutritional needs of infants stricken with Spinal Muscular Atrophies.
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The Mission of the Jennifer Trust for Spinal Muscular Atrophy (JTSMA) is to be there for everyone affected by or involved with Spinal Muscular Atrophy (SMA), providing support and information, and investing in research. The JTSMA is the only British organisation dedicated to providing support, care, information and the funding of research into SMA.
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SMA Angels Charity. is a 100% volunteer, non-profit charity dedicated to fight in the battle against Spinal Muscular Atrophy ("SMA"). SMA is a devastating neuromuscular disease. In its most severe form it is the "Number One Genetic Killer of Children Under Two". At present there is no cure or treatment.
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The Benjamin Foundation was founded as a volunteer-driven and publicly-supported organization dedicated to raising awareness and funds for the fight against Spinal Muscular Atrophy (SMA). All net contributions will be directed to the Families of SMA, the SMA Foundation and/or FightSMA (Andrew's Buddies) for scientific, educational and services-based needs.
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The Miracle for Madison Fund is a fund set up to raise needed dollars for OSU researchers to find a cure and support the MDA/SMA clinic at OSU through coordination of medical services through Columbus Children's Hospital.
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Paytons Pals is a non-profit, all volunteer organization, dedicated to the eradication of spinal muscular atrophy, focused on spreading awareness and committed to the support of SMA-affected families.
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Dedicated to providing information, support and help for anyone facing the incurable genetic disease Spinal Muscular Atrophy (SMA). Learn about the disease, research, treatments, and life with the disease, speak with others in similar positions.
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Welcome to the web site of Families of Spinal Muscular Atrophy - a comprehensive, on-line information and resource center. We invite you to explore our pages and reach out to our 'extended family.' Information on cause, genetics, therapy, research, daily life. Interactive areas,
local chapters, fundraising activities.